Volume 12 Issue 12
Analysis of the quality of life in families with individuals diagnosed with williams syndrome in Pakistan
1Marwa Aslam, 2Dr Muhammad Sami Bilal, 3Dr Muhammad Kamran Tariq, 4Mobeen Ali, 5Umar Khan, 6Kamran Safdar
1Mayo Hospital Lahore
2Assistant Professor of Psychiatry, CPSP Karachi
3SR Medicine, Shahida Islam Medical Complex, Lodhran, Pakistan
4PIMS
5PIMS
6UHS Lahore
ABSTRACT
OBJECTIVE: A developmental disease called Williams Syndrome is characterized by a varied intellectual impairment. Williams Syndrome patients need the assistance of numerous educational and medical experts throughout their lifetime. The effects of this handicap, particularly on families, are not well understood, but, in the local context. Knowing the degree of quality of life (QOL)as stated by families with Williams Syndrome (WS) was the goal.
METHODS: The kids life Scale was used to examine 33 families that made up the sample. Their young people ranged in age from four to twenty. Emotional health, physical health, material health, personal growth, interpersonal relationships, self-determination, social inclusion, and rights were the eight key quality-of-life areas that were assessed.
RESULTS: The data gained showed that a person’s quality of life might be affected by a variety of factors to varying degrees, regardless of the severity and existence of an intellectual handicap. No variations in the quality of life were found that were statistically significant, however, there were disparities in reliance levels in the self-determination subarea (p-value <.05).
CONCLUSIONS: Based on these findings, we examined how families and their surroundings could be affected socially and emotionally.
KEYWORDS: Williams syndrome, quality of life, emotional health
